Kids on the Move

Kids on the Move come for Ada a couple of times a month. They are heaven sent!! Ada has a physical therapist, speech therapist, occupational therapist and other providers. They teach me what to help Ada with. It is fun to learn new things and which therapies work the best. Some days I look at Ada and I think that she is the reason why I became a nurse. Ever since I was a young girl I knew that I wanted to work in the healthcare field. All of my classes at SUU were pre-med. But when I met Andy and the reality of a family came into play a nurse seemed more likely. (with much less schooling) I think that the Lord knew early on that this training would be instrumental in taking care of my children especially Ada. It is so amazing to look back through the years and see the Lord's hand in every aspect of my life. Everything has turned out the way it is supposed to. All I needed to do was trust in Him. Sometimes that is easier said than done. I know I have been guilty of trying to tell the Lord what needs to be done, and what I want right now. But fortunately for me He sees the BIG picture. It's all a part of His plan. I just need to be patient and have faith. Ada is doing so well. She thinks that she is so cool now that she is sitting up more. It's fun to see her make small improvements. All is well at the Wimmer household!! YES!!

No Clots

Just to assure everyone, Ada's arm is okay. She has had some swelling and discoloration of her right arm. I took her up to Primarys to have a doppler (ultrasound) of her arm. Her arteries and veins looked great. There was no blockage. But initially the doctor and I could not figure out why it was swollen and discolored. After some brainstorming and me explaining her last two surgeries, it donned on me......the surgeon had removed and ligated a bunch of lymphatic vessels and nodes....lymphedema. Ding ding ding we have a winner! What kind of nurse am I? Why did I not think of that before? I guess because I was more worried that it was a blood clot more than anything. But things look great. I am so relieved!

UEA, YEAH!!

We finally got a break from reality. Some friends of ours invited us up to their cabin in Park City over the weekend. We had a blast!! The four-wheelers were constantly moving, the kids even braved the rope swing, and there was good food and good company. It was much needed. Thanks Johnsens for the great weekend!

Cardiologist Visit

Ada saw the cardiologist today. Her chest xray looked great!! She is eating normal formula now and loving it. She weighed a whoppin' 12 lbs. 7oz. She still has some extra pressure in her pulmonary arteries so he wants her to stay on the oxygen at least another 6 weeks. AW CRAP! Oh its not that bad, it would just be better to not have to be attached to a cord. But the cardiologist was very optimistic. It is just a relief. She is growing and getting stronger. She has been rolling all over my living room floor, and she is the master at sitting in her corner chair. My other kids are getting excited for Halloween. I went to parent teacher conferences and got good reports on all of my kids. Halleluiah!

Trying New Things

Things have been so crazy at our house, so I haven't posted for a while. Cole started pre-school and he loves it. He gets to ride the bus to school. (Mason and Sydney are so jealous) It has taken him about a month to get used to it and not cry when he is leaving. But he is doing well. His language has really taken off and becoming more spontaneous. We can actually carry on a simple conversation. We have started Ada on rice cereal and squash. She loves it! But she doesn't always swallow it. We go back to the cardiologist this Thursday and I hope that we can get the oxygen off!! I am praying!! She is amazing! I can't even tell you how much I love her, and all my children for that matter!! I am so blessed!

Oxygen

I took Ada to the cardiologist today. Her heart looks great, but she does have a plueral effusion. (fluid around her right lung) So she is still on oxygen and will be until her next appointment which is in four weeks. But before we had the echo done this is what I went through: After she had her chest xray the doctor came in and said that her heart looked bigger than it did when she left the hospital. He said that he wanted to get an echo done. I thought that I was going to cry. It was all I could do to keep the tears from falling. This is exactly what they said to me last time before she was hospitalized. I thought, "here we go again." After her echo was done the doctor came back and said it was a false alarm her heart looked great. But he wanted her to stay on the oxygen until next visit. So I guess we are moving in the right direction slow but sure. She is gaining weight and is oh so stinkin cute. I won't tell anyone that I drove up to Primary's yesterday only to find out that her appointment wasn't until today. (oops brain fart)